One of my resolutions on the 1st (I wrote a long list this year) was to blog more often. I’m hoping we can all pretend that the first two weeks of the new year without a post never even happened and we can start working on this resolution from here on out, OK?
One of the reasons we haven’t had a blog post is because we’ve been so busy (Wendy’s photography business and Mary Kay team, visiting family, meetings with Zack’s school and much more). The other reason why we haven’t had a blog post is because among all of that craziness, I’m working really, really hard to disconnect more often and for longer periods of time and just be living in the quiet moment of Now. So, the kids and I have been playing pretend games together and Scott and I have enjoyed time together with some new favorite shows and even a game or two. I sometimes get so stuck on what I should be doing; who I should be helping; what I should be planning… that I forget about me and about Scott, Zack and Addie. No more of that nonsense. It’s all about balance.
So here we are.
I woke up a few days ago and just felt like we were on the cusp of something huge; something much greater than just a new year or a new month. We have spent so much of the past year transitioning from one home to another, one job to another, one lifestyle to another, that I finally feel as though we are ready to just live it now. To just be where we are and not where we are going or where we were.
Life is such an amazing adventure. I just want to soak up every minute of my journey.
Zack and Addie are the most wonderful little humans I’ve ever known. I might be biased.
Addie is so quick and witty. She greeted me at 7 a.m. today by shouting “Open the door, please, it’s good morning!” And when I opened the door, she reached out with her hand, shook mine and said, “Glad to meet you, Momma.”
She just continuously makes me laugh. More than four months after moving in to our home, she still asks her grandparents and random strangers if they want to come see her new room.
Her imagination is insane. She jumps from princesses in peril to babies and towers and hammering things that need fixed all within about 20 minutes. And there is so much drama! She knows how to work a pouty lip and lower her eyes and glance up at you through her dark eyelashes. You can’t not smile, I guarantee it.
We had some trouble with her stubbornness and strong disposition, but now we are getting a better handle on how to make her want to be a good girl instead of just going into discipline-the-bad-girl mode. She is relatively quick to clean up her toys, many times without me even asking, and she’s even more tolerant about sharing and brother hugs.
I love her quiet moments so very much.
The other day, I think we both wanted and needed some cuddly time together, so I suggested we watch a show under the blankets together while Zack was at school. I suggested princess movies and Bubble Guppies and even Dr. Seuss.
“No, momma,” She said. “I want to watch Momma’s show.”
I didn’t think it would last, but I gave it a try and flipped on the last 20 minutes of a terribly cheesy movie I watch on repeat whenever I get 20 minutes to catch my breath or eat a snack. She watched it all with me and held my hand tight. Near the end, she pointed to the lead female character, in a slightly sad scene, and told me that it was Momma.
But then quickly, she turned to look at me, put my face in her hands and said, “But Momma is happy because Addie makes Momma happy.”
And the Z-Man. Oh, how he is growing in so many ways in these recent weeks.
We are moving forward with getting him an aide for school and at home (about 14 hours/week total to start) and as long as the Commonwealth approves it, he’ll have someone by his side within the next two weeks. HIs most recent IEP meeting to discuss our plan for him for the next year, went well, all things considered.
It’s never easy to read a booklet on the most minute details of your firstborn. It’s never an enjoyable experience to hear things like “lifetime of needing special assistance” and “safety issues to himself” or words like “delay” and “lacking.” It doesn’t matter that we’ve done these types of meetings numerous times. It doesn’t matter that we are always grateful for them and for the handful of people in the room who care so much about Zack that it’s almost like he’s theirs, too. For me, it’s always like a rehashing of his Down Syndrome diagnosis. I grieve for a day or two, and then, we’re all OK. And I begin moving a thousand miles an hour to work on new ideas and areas of concentration. We’re asking a lot of “wh” questions (What color is that? Where is this?) to work on speech and we’ve got a lot of work to do to keep him attending to tasks without disrupting others or posing a safety concern to himself. But we have plans and we have dreams and they are all big and we are so excited.
Zack’s teacher spoke of his potential and she did it in such a proud way that I think “potential” is my current favorite word. Isn’t it exhilarating what power ‘potential’ has? You can do amazing things and be amazing. You can work to reach your potential because no one’s potential is just handed to them. Potential is a beautiful thing.
Zack has a good friend at school named Maggie. She’s a very quiet, shy girl who doesn’t typically like to be touched or disrupted, especially if she’s feeling a little anxiety. But for whatever reason, Zack can approach Maggie in any situation and hug her or hold her hand and she always lets him. This morning, it was just Zack and Maggie on the van to school. When we opened the door and he saw her, Zack just smiled and kept saying her name over and over like a song. Before I closed the door, I saw they were already holding hands.
So here’s to more blogs. And to potential. And to holding hands and making people happy. Because that’s right where we are now.